We will be going to Rochester on Tuesday night for an appointment on Wednesday. Dr. Wang (Michael's neurologist) wants to do an EEG to see if he can detect any seizure activity. If there aren't any seizures, we can try weaning Michael off of the anti-seizure medicine he has been on since July 2007. Even though the bulk of the tumor is gone, the scar tissue can still cause seizures but let's hope that isn't the case. That would be a big relief. There is a danger of organ damage with these types of medicines so I would really love it if Michael could stop taking it.
Michael has to be "tired" for his EEG so the plan is to keep him up very late Tuesday (probably by swimming), get him up early on Wednesday and then spend the morning at the toy museum playing hard. His test isn't until 2:15 pm but we knew that if we drove to Rochester on the day of the test, there would be a good chance that Michael would fall asleep in the car (he always does on long trips) and then wouldn't be tired for the EEG. That is why we are going down the night before.
So, we are going to have a very busy week - we'll be in Rochester Tuesday and Wednesday for lots of swimming, playing and an important medical test. We will be in Syracuse for our last chemo treatment on Friday and then we are traveling to Jeff's Aunt's home in Albany for Easter dinner on Sunday. Of course things have been kind of hectic here for the last couple of weeks anyway. Jeff flew to Indiana for a week of special training a few weeks ago and spent most of last week in Buffalo for the same reason. He got home just in time to make it to Michael's square dance show Thursday night - which was awesome.
Michael even dressed the part with a cowboy hat, plaid shirt, blue jeans and John Deere cowboy boots.
Michael and his dance partner did a great job!
They did two separate routines and all of Michael's classmates danced their little hearts out.
In other news, Brian has a wonderful new girlfriend, Jeanine, and we have actually been seeing them a lot lately (thank you Jeanine). Michael is absolutely loving the time he gets to spend with them. Hopefully with the passing of winter, we will get to see Jenny and Ralph a little more also.
I will post and let everyone know how things go on Wednesday. Please keep Michael in your thoughts and prayers, JoAnne.