Monday, January 5, 2009

Michael's counts are up ...

We made our weekly trip to Syracuse for chemo today. Michael's platelets are finally back up near the normal range at 104,000. Treatment went smoothly and the weather was very cooperative today. My little buddy had some dinner when we got home and then fell asleep cuddled up next to me while watching America's Funniest Videos (his new favorite show). Life's little moments don't get any better than that!

Michael went to a birthday party yesterday for his best buddy from school, Cory. He was so excited and had a great time. A little while after he got home though, he complained that he felt "funny all over". He became very distraught and said he had to lay down (which he did). A little while later, it happened a second time. Both times, he felt better after laying down. I'm sure you will understand when I say that this has Jeff & I in a state of panic. A "funny" feeling in his nose is how we discovered the brain tumor a year and a half ago.

Today, Michael told Dr. Kennedy about the incidents and she thinks it may be some type of breakthrough seizure activity. She said that the anti-seizure medicine Michael is taking is based on body mass and we haven't adjusted the dosage since his diagnosis in July of 2007. And he has grown quite a bit since then. This was disheartening to hear since we were hoping to start weaning Michael off of his anti-seizure medication soon. We didn't leave Syracuse with any definitive answers today but I will keep everyone posted on any new developments.

Michael's next MRI is in 3 weeks so now we will be on pins and needles until they tell us that the tumor is still shrinking. Please keep Michael in your thoughts and prayers, JoAnne.

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